We're at SPICES in Wangsa Maju. We go there every wednessday for about 2-3 months now. Here you see us crawling all over, john having fun with the wide floor space. Some may ask why make a walking boy crawl? Ans: Walking co-ordinates the legs but crawling requires co-ordination of both arms and legs. Works the brain a bit more.
Mind you it took quite an effort before he found the fun of crawling. When we 1st introduce the toy he would just stand up and walk over to get the ball. We had to help him co-ordinate his arms more before he could move!
Tuesday, November 3, 2009
Ya... john enjoys his bicycle more than the 'horse'. Yesterday we started his 81st HBOT (oxygen therapy) session. We had to delay it for 2 weeks cos he had a cold and then passed it to mom! Fyi:- A cold can block your ears and when under pressure like in HBOT chamber it can cause earache.
It's a minor set back but we're back on the trail.
Monday, October 5, 2009
John just got a new toy; it's a 'horse'. This is his latest exercise machine which is suppose to work on his trunk muscle and balancing. It will help him walk better. It's just past 1 year after the accident (happened on 28/09/08). We've been having mixed feelings; happy that john's with us, walking & laughing but sad cos he's nowhere near the 10 year old boy before the accident. At this point it would seem he's unlikely to go back to mainstream school. Many people say that after 1 year; progress happens slowly and only marginally. However we believe God is able and willing to help us. God's plan for john may be different but it is nevertheless important. As parents we'll continue to educate him to our best ability so that he can discover God's will for his life. In Eph 2:10 it says 'For we are God's workmanship, created in Christ Jesus to do good works, which God has prepared in advance for us to do.' We don't know how much he'll be able to do or how much we're able to help.
I will do what I can
I am only one;
but still I am one.
I cannot do everything,
but I can still do something.
Therefore, I will not refuse
to do the something
that I can do.
Thanks for your concern and prayers they are much appreciated.
15th sept was john's birthday. We celebrated it with a choc cheese cake baked by aunty choon heah. As you can see here john has problem with oral motor skill ( associated with speech); he can blow a whistle but he can't blow a candle. I put a tube in his mouth hoping he'll blow into it. He's done it before but not today!
This was a surprise for Simon as it's the 1st time he saw john cycling on his own. (we've been training 'secretly'!). He stops in between cos his footing go out of place and we have to help him adjust his foot. The person cheering him on is kakak Suyati. He's not about to go round the neighbourhood but he has progress since 2 months ago! How we wish his recovery will speed up; but just as God gives speed to lightning, He also gives speed to the snail therefore we'll trust he's at best speed cos God knows best.
John needs to put pressure on his arm joints so that his brain will better identify his arms and hands. Since he's a big boy we used a lorry inner tube to help lift his lower body. To keep him motivated ruth feeds him popcorn or anything handy that he likes. (It also works his back and has enable him to walk more upright.) Simon holds his legs so he doesn't wriggle out! Nobody really likes going to the gym right?
First thing we need to do is getting john to relax and find his balance in water. Here you'll see simon helping him to 'swim' and poh wan getting him to float in water. Like everything else it seems he has to relearn his swimming skills. May God give us patience and perseverance....
An excerpt from Milestone of Thanksgiving by Bro.KS Gan for EEFC bulletin.
(Original can be viewed in the first blog)
On 28/9/08,Simon caught a glimpse of a boy with familiar spiky hair being carried into the lift, and he rushed forward to see who the boy was. His heart skipped a thousand beats when he realised that it was his boy. Simon related how the father of the 2 boys who swum together with John noticed
that John was missing from the boys’ company in the pool and promptly ordered
the boys to go into the pool to search for John. They found John lying on the
bottom of the pool. The father jumped in to pull John out of the water, applied
CPR, based on what he saw from TV. Later the hotel’s event manager took over to
administer CPR under the watchful eyes of a doctor there who was a guest there.
John’s fingertips, when pulled out, were already blue, but his arms and legs were
limp and not stiff. Within minutes of CPR, John’s finger tips had turned reddish, amidst all the
coughing out of water and fluid.
On 22/10/08, John moved out of ICU into the pediatric ward.
I will make rivers flow on barren heights, and springs within the valleys. I will turn the desert into pools water and the parched ground into springs. I will put in the desert the ceder and the acacia, the myrthle and the olive. I will set pines in the wasteland, the fir and cypress together, so that people may see and know, may consider and understand, that the hand of the Lord has done this, that the Holy One of Israel has created it. ♥♥♥ Isaiah 41:18-20